Has anyone heard…?

I always believed that MS came into three categories, there was Relapsing Remitting and Secondary Progressive, which I moved into unwittingly and Primary Progressive. I’m a wheelchair user, my friend is a walking wounded and we all know that it can take many shapes and presentations…however, there is a new category which has been discovered in Ramsey Street, Erinsborough, Melbourne, Australia; it’s called the ‘Susan Kennedy Category’.

We’d like hers’.

Since Susan’s diagnosis in 2008 she’s had a husband who has cheated on her, she’s been central in a cyber bullying plot, she’s offered to be a surrogate, not to mention managing to carry on her relationship with Karl. She carries on her career as a Principal in a high school and has various family members as lodgers.  I don’t know about you but with my type of MS, the stress of all of that would have sent me into an extended relapse.

Do I have to move to Australia to get this MS?

So what I want to know is it the warm weather? Could it be the vitamin D? Or could it be the TV? I always fancied myself as an actor!

No, it’s none of the above! So then, my friend Susan is about to undertake a new trial, in Karl’s hospital, on the benefit of remyelination.  I think this will be interesting to see how this pans out as this afternoon we have been discussing whether or not this could work. The scarring on the nerve can surely not be repaired by just replacing the myelin.

Can anyone help us on this one?

Or pay for flights to Australia? We’ve been Googling trials and there’s nothing in this country, but we’re up for it!

About I'M Still me.....

I'm an MS warrior and writer who enjoys Prosecco, chocolate, looking glamorous and who will NEVER go grey!
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2 Responses to Has anyone heard…?

  1. tilly jones says:

    been seeing that, and worried that the programme is setting an unrealistic expectation. the trials are showing some fixing of missing myelin, but nothing yet to prove it stays fixed, and only works on small numbers of those with RR MS. I so want to write to the show and tell them to stop the storyline, as nothing proved yet and may never be as drug manufacturer keeps getting sold..

    I’m unhappy with the story line. they could be showing MS in a realistic way and helping us sufferers

    • I'M Still me..... says:

      Hi Tilly, Thank you for taking time to read and comment on my blog. I am also fed up with TV shows portraying MS as a minor inconvenience. In a few instances it can be mild, but many of us have a daily struggle to manage it. As a warrior I will be positive and face the MS demon head on, but please, TV be realistic. Show the real battle.

Come on, talk to me :)

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